EURORDIS-RareDiseases Europe is a unique, non-profit alliance of 808 raredisease patient organisations from 70 countries that work together to improvethe lives of the 30 million people living with a rare disease in Europe. Byconnecting patients, families and patient groups, as well as by bringingtogether all stakeholders and mobilising the rare disease community, EURORDISstrengthens the patient voice and shapes research, policies and patientservices.
EURORDIS is recruiting a Web Technology Manager to be based out of theParis office reporting to the Communications Director (functionally) and theCommunications Manager (operationally). The position holder works closely withthe wider communications team, spanning communications, events and fundraising,as well as the wider EURORDIS team across Europe.
The Web Technology Manager is responsible for the maintenance, updates,layout and accessibility of EURORDIS websites including: